Eosinophilic esophagitis is food intolerance mediated. I eliminated so much stuff when we first found out, but the culprit is gluten. And I’m not celiac. I still can’t swallow well when eat gluten. It’s autoimmune based. I wish there was more and better research.
I really hate when people make these sweeping statements. It emboldens people to gaslight and harm others and to believe they know more about other people's health issues than the patients themselves. Even in the example cited, there were 27 people who did improve when abstaining from gluten and got worse when it was reintroduced to their diet.
People who have food sensitivities are gaslit at every turn regarding their own health - and this kind of biased reporting increases the chances of abuse. Some people will intentionally sneak allergens into food they share with others when they don't believe it's a "real" ailment, and this kind of false information can be used in custody or domestic violence disputes.
I have a serious autoimmune disease that was only diagnosed last year, after more than 40 years of being dismissed and gaslit by doctors and close relatives and others. There is such a difference in care when you have a diagnosis that people "believe" in, and it transforms your quality of life, even when the disease itself cannot get better.
I also have food sensitivities and gluten is one of them. I do not have a problem with FODMAPS at all, and I don't have any negative symptoms unless I am exposed to gluten. This happens whether I am aware of the exposure or not.
Please normalize believing people about their own health problems. It is good to perform scientific investigation, but the interpretation of the results has to be done cautiously. If there is a discrepancy in some (or even most) cases between what parents report and what the data shows, that doesn't mean it applies to all cases. It's better to ask the question of why the data doesn't reflect what people are self reporting, and then investigate possible alternatives to help inform people of the underlying causes. But claiming that nobody has a sensitivity to gluten just because only 27 ppl out of hundreds did, ignores those 27 and also fails to help the other hundreds.
I wish this were the case for me, but after 5 years of suffering with IBS, every possible test (including celiac), medications, a dr convinced me to try gluten free for 30 full days. I did not believe it would do anything as I had never been able to connect eating gluten to symptoms. Also I had no desire to cut out so many wonderful foods. But right at the end of the 30 days, I started to notice major changes, and quickly it was like night and day, so much better. I also thought I could probably cheat once in a while, but now it is clear that I get quite sick whenever I eat gluten. Don’t know if there’s some other explanation, wish there was, but I’m not going back.
Thank you. SpouseMD was diagnosed with Celiac in 2011-ish and agree that the gluten-free bread options today are light years beyond what was available when he was first diagnosed.
This gochujang is supposed to be GF:
Chung Jung One O'Food Gochujang Korean Chili Sauce, Medium Hot Sauce, 7.50 oz. (Pack of 2) https://a.co/d/adF7RXw
By the way, tell me if you think it’s not GF. My wife will want to know. Thx.
thanks for this!
Always a pleasure!
Eosinophilic esophagitis is food intolerance mediated. I eliminated so much stuff when we first found out, but the culprit is gluten. And I’m not celiac. I still can’t swallow well when eat gluten. It’s autoimmune based. I wish there was more and better research.
I really hate when people make these sweeping statements. It emboldens people to gaslight and harm others and to believe they know more about other people's health issues than the patients themselves. Even in the example cited, there were 27 people who did improve when abstaining from gluten and got worse when it was reintroduced to their diet.
People who have food sensitivities are gaslit at every turn regarding their own health - and this kind of biased reporting increases the chances of abuse. Some people will intentionally sneak allergens into food they share with others when they don't believe it's a "real" ailment, and this kind of false information can be used in custody or domestic violence disputes.
I have a serious autoimmune disease that was only diagnosed last year, after more than 40 years of being dismissed and gaslit by doctors and close relatives and others. There is such a difference in care when you have a diagnosis that people "believe" in, and it transforms your quality of life, even when the disease itself cannot get better.
I also have food sensitivities and gluten is one of them. I do not have a problem with FODMAPS at all, and I don't have any negative symptoms unless I am exposed to gluten. This happens whether I am aware of the exposure or not.
Please normalize believing people about their own health problems. It is good to perform scientific investigation, but the interpretation of the results has to be done cautiously. If there is a discrepancy in some (or even most) cases between what parents report and what the data shows, that doesn't mean it applies to all cases. It's better to ask the question of why the data doesn't reflect what people are self reporting, and then investigate possible alternatives to help inform people of the underlying causes. But claiming that nobody has a sensitivity to gluten just because only 27 ppl out of hundreds did, ignores those 27 and also fails to help the other hundreds.
*what patients report (typo said parents)
I wish this were the case for me, but after 5 years of suffering with IBS, every possible test (including celiac), medications, a dr convinced me to try gluten free for 30 full days. I did not believe it would do anything as I had never been able to connect eating gluten to symptoms. Also I had no desire to cut out so many wonderful foods. But right at the end of the 30 days, I started to notice major changes, and quickly it was like night and day, so much better. I also thought I could probably cheat once in a while, but now it is clear that I get quite sick whenever I eat gluten. Don’t know if there’s some other explanation, wish there was, but I’m not going back.
Except; I have sensitivity to gluten... I break out in a rash when I eat it.
Thank you. SpouseMD was diagnosed with Celiac in 2011-ish and agree that the gluten-free bread options today are light years beyond what was available when he was first diagnosed.
I usually substitute shiro miso and a little dark tamari for fermented soybeans. It's not....quite the same, but very close.
How do crohns/colitis sufferers fit into this. Do that have a gluten allergy like coeliacs or is it something else?
We also have GF Vegan beer now too.